Cancer

When Grief Knocks Softly

Thoughts on loss and my mother on the anniversary of her death.

There has been so much collective grief and loss this past year and a half. Today I sit with my personal grief and remember my mother as she passed away 7 years ago today.

Her voice in my mind isn’t as strong, but it’s still so close. To all of you who have felt grief or loss, be it the death of a family member, partner, friend, or even bff pet, I hope you also feel them with you. Death is inevitable, as I wrote the day before my mom died, but sometimes it really feels unfair when someone we love gets taken sooner than we think they should.

I feel that pain with you today. I feel the anger of missing out on tons of opportunities, to travel, to talk, to get and give advice, a hug, to laugh, or even argue, just to be together, the joy we could have kept sharing.

I also feel the deep appreciation for love that was here, that was felt, that is in me and will live on and on and on.

This date is always really hard…but it is also really good. I love moments that bring me closer to my mom again, and today I feel close to our communal human experience as well.

I am thinking of you out there, in your pain, joy, and memory.

I hope this last journal I wrote the day before my mom died can somehow connect with you and help you feel what you need to feel.

I love you friend, stranger. And I’m glad that you are alive here with me today.

August 25th, 2014

Today was hard, beautiful, overwhelming sad, hopeful, tiring, peaceful.  So much in one day.

I’m thankful that my mom is still here. I don’t want to go forward to a future where she’s not…but it’s all starting to be a little less impossible…and with that I feel a little bit more like the world is going to be okay, even after.

My mom lost her ability to communicate now, almost totally.  She did turn into me when I snuggled up in the bed though, and then held her hand on my leg and then in my hand.

She’s there, she’s just also very far away.

So many people to make sure that they know, so many people to call.  I would hate for someone to be taken by surprise after she’s gone…but it might happen.  It’s just so fast, a few extra days of slowing would be nice to sit, and grieve, smile, even laugh, and do lots of crying.

Which I have to say I will be ready to be done with.  The crying just comes so easy sometimes, but I’m exhausted and don’t want to be sad for the rest of my life.

But, it has been a good one up until now hasn’t it.  And she has gone through it like a blazing star.  So bright you can’t be near her and not be affected by her joy and her positive spirit.  

And this is today.  And if we focus on this moment now it is all a bit easier to bare.  

And death is inevitable.  And we go bravely into the dying of the light.  And we except that it is. And we grieve and we live, always remembering, always carrying her with us.

I carry you with me–i carry your heart with me (i carry it in my heart)

And sitting here, next to you with the family…I think you know that.  I think you know that you are still here with us, and you will always be.

Letters to the Ones We Love (On Valentine’s day and not so special days in mid-July)

It’s Valentine’s Day weekend and there’s lots of love around.  Personally, I find this holiday to be a mix of the annoying (overpriced 7-course meals, hetero-normative displays everywhere, so much sugar) and beautiful (my students all saying why they love and appreciate each other, excuses to take time for yourself with the person you love, and really delicious 7-course meals).  But, my mom always taught me to cling to the best of things, so I’m sending out love and holding close to the love I’m given.

My motivation to write a book about my mother came from reading the journals I had written the summer I was home in Fargo taking care of her as she was dying.  Throughout those 3 months my partner Brandon supported me over the phone from Philadelphia.  It was also during that time that we decided to have a ceremony that would include my mom.  Not a wedding, but a day when we could share our love with each other and our families.  It’s one of the best decisions I’ve made. The pictures from our “Celebration of Love and Family” (as we chose to call it) are gems of my mom’s happiest moments 12 days before she died.

Celebrating love together

Celebrating love together

But, I’m getting ahead of myself.  The piece of journal writing I’m sharing today is from a not so special day when I needed support and Brandon was there for me.  He continues to be a person that I am so happy to be with while we break and rebuild.

My mom knew that I would be okay because I had you.  It is a part of what made her passing easier.  She loved you because you’re awesome, but also because she trusted you to see that I was well taken care of.  You love me in a way that she always did–with gentleness, blind (but you try to see my flaws too) optimism, and abounding support.

This Valentine’s Day I remember my mother who taught me I deserved to be loved, and think of Brandon who helped keep me together when my world broke.  This love is something I hope for everyone sharing in my writing today.  May you find someone to hold hands with as you live, as you break, and as you walk into the dark.

Happy Valentine’s Day.  Love to you all.

——————————————–

July 16th, 2014

 

Hey Brandon,

I’m writing to you while you’re so far away in Philly tonight.

It’s unexpected to see so many good things coming out of tragedies, but, I guess I’ve always thought that. It’s peculiar, but having to face death makes the richness of life come alive. Things that weren’t important, really aren’t important and of course the things that are you hug and hold dear.  I’m thinking often about what I actually want to do with this life because I’m so very aware of its limits.  

It means a lot that you’re willing to be here with me, emotionally.  I mean, I think it’s the right thing to do, but I’m sure it’s not easy.  You get to do all the support and none of the actual experience sharing.  You brighten up my family though, just with a phone call.  It’s funny how much they love you, how much they’ve taken you in to be one of us.  I’m pretty sure they think you’re the ultimate partner for me (and that’s probably a good thing).

Sometimes, when I think about how hard all this is, and that there will be a time when it gets even harder, I just imagine myself in your arms. It’s like I know I will be okay, because when I break you’ll just hold me together.  

It’s hard to be away from you, but this time it doesn’t feel hard for the same reasons.  I don’t feel a lessening of our relationship, even though the distance is real.  I’ve never questioned once while I’m here whether we should really be together. It’s nice to know I want to belong with someone.  It’s nice to know we can argue about something and we’ll both really listen to the each other.  It’s not nice to not feel you…that distance of skin is tangible.  It just makes me feel tired and like I’d really like to kiss you soon. 

I’m so thankful that I’m here.  

This past month I’ve started to accept the fact that I’m going to loose my mom.  That it’s going to hurt like hell, and I’m going to miss her everyday, but somehow I I will be okay.  

She was a lot happier today.  I think that’s where I want to turn my energy–not into trying to make her live forever, but in trying to make her life the best while I can. We are all going to have to die, so isn’t it best to go into the dark holding the hands of people you love.

I love you. You’re the best to share life with.

Betsy

Brandon, my mother, and I during our Celebration of Love and Family

Brandon, my mother, and I during our Celebration of Love and Family

i carry your heart with me(i carry it in my heart)

“Getting Better” or How Grief Lets You Grow (even when you don’t want to)

Time is hard, and time is healing.

 

Mom, I’ve been doing so much better.  I can talk about you and feel pride and love instead of pain. I can go out and enjoy time with friends and not feel overwhelmed with thoughts of retreating into the corner to be alone.  I can think about the future and feel good about moving forward without being afraid to go anywhere without you.   I’m healing. I’m moving. Which is so scary mom, because it’s still away from you.

 

I think about you in every major decision, whenever someone is in pain, whenever someone is proud of me, or I hurt, or my life changes–you are a part of my future, even if I can’t tell you about it.

 

Today, sitting in a coffee shop with a good friend, I think about how you would laugh with me at the barbie doll girls sitting next to me, brood with me over the rudeness I felt when someone questioned my intelligence because I’m female, and cry with me when the house I was so excited about slipped through our fingers.

 

And because I can still remember you and feel you, it’s like you are sharing these things with me.  I still fear that I’ll keep forgetting you, that time will erode away the strength of my sense of you.  Will I be able to remember your scent, you hugs, the details of your smile and love 30 years from now?

 

Time is hard…and time is healing.

 

Grief has a way of making you change and develop even when you don’t want to, maybe especially when you don’t want to.

 

I can cry now. I couldn’t for about 5 years, unless it was about losing you.

 

I would never wish for this, but now that it is a part of me I will not begrudge it either.

 

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A happy memory: My 27th birthday, the last I got to share with my mom. I’m thankful to be able to look back at this and smile. We shared so much love and fun!

—–

 

When I came across this list from americanhospice.org it rang true for me.  I was happy to feel that I have been healing.  I know my mom would be proud of me to know that I am growing on and growing stronger.

 

I hope that others can feel resonance with the progress of this list.  Maybe you feel some of these changes happening in you after you’ve felt pain or loss.  Maybe you haven’t yet, but you will.

 

As we all move forward through the complications of life, filled with loss and joy, I hope time can continue to bring growth.  Time is hard, but time is healing. Time is hard, but time is growth. Time is hard, but time is life–and she would want us to live it well.

 

You Know You Are Getting Better When…

By Helen Fitzgerald, CT

The progress through grief is so slow, and so often of a “one step forward and two steps backwards” motion, that it is difficult to see signs of improvement. The following are clues that will help you to see that you are beginning to work through your grief:

  • You are in touch with the finality of the death. You now know in your heart that your loved one is truly gone and will never return to this earth.
  • You can review both pleasant and unpleasant memories. In early grief, memories are painful because they remind you of how much you have lost. Now it feels good to remember, and you look for people to share memories with.
  • You can enjoy time alone and feel comfortable. You no longer need to have someone with you all the time or look for activities to keep you distracted.
  • You can drive somewhere by yourself without crying the whole time. Driving seems to be a place where many people cry, which can be dangerous for you and other drivers.
  • You are less sensitive to some of the comments people make. You realize that painful comments made by family or friends are made in ignorance.
  • You look forward to holidays. Once dreaded occasions can now be anticipated with excitement, perhaps through returning to old traditions or creating new ones.
  • You can reach out to help someone else in a similar situation. It is healing to be able to use your experience to help others.
  • The music you shared with the one you lost is no longer painful to hear. Now, you may even find it comforting.
  • You can sit through a church service without crying.
  • Some time passes in which you have not thought of your loved one. When this first happens, you may panic, thinking, “I am forgetting.” This is not true. You will never forget. You are giving yourself permission to go on with your life and your loved one would want you to do this.
  • You can enjoy a good joke and have a good laugh without feeling guilty.
  • Your eating, sleeping, and exercise patterns return to what they were beforehand.
  • You no longer feel tired all the time.
  • You have developed a routine or a new schedule in your daily life that does not include your loved one.
  • You can concentrate on a book or favorite television program. You can even retain information you have just read or viewed.
  • You no longer have to make daily or weekly trips to the cemetery. You now feel comfortable going once a month or only on holidays or other special occasions.
  • You can find something to be thankful for. You always knew there were good things going on in your life, but they didn’t matter much before.
  • You can establish new and healthy relationships. New friends are now part of your life and you enjoy participating in activities with them.
  • You feel confident again. You are in touch with your new identity and have a stronger sense of what you are going to do with the rest of your life.
  • You can organize and plan your future.
  • You can accept things as they are and not keep trying to return things to what they were.
  • You have patience with yourself through “grief attacks.” You know they are becoming further apart and less frightening and painful.
  • You look forward to getting up in the morning.
  • You stop to smell the flowers along the way and enjoy experiences in life that are meant to be enjoyed.
  • The vacated roles that your loved one filled in your life are now being filled by yourself or others. When a loved one dies he or she leaves many “holes” in your life. Now those holes are being filled with other people and activities, although some will remain empty. You are more at ease with these changes.
  • You can take the energy and time spent thinking about your loss and put those energies elsewhere, perhaps by helping others in similar situations or making concrete plans with your own life.

You acknowledge your new life and even discover personal growth from experiencing grief.

 

i carry your heart with me (i carry it in my heart)

Her Secret Cupboard

My mom has a secret cupboard where she stores extra presents that she bought.

I guess it wasn’t actually that secret; my brother and I knew that if we looked in the cupboards in the basement across from the big freezer we would ruin our Christmas/Birthday surprise.

Surprisingly, it was easy for my brother and I to resist the urge to spoil our presents and we mostly left the cupboards alone. That task became more difficult as time went on, though, because my mother had a bit of a present buying addiction and the cupboards had a way of overflowing. She would buy gifts from January until December and usually by around October she’d bought more than enough presents for everyone she knew, so she’d start buying “emergency gifts” or extras for the next year.

It was one of her best and most hoarding-like qualities.

Even though she gave gifts prolifically to those around her and her family, those cupboards in the basement across from the big freezer are still full of “extras”.

This summer I found two Dr. Seuss books there (Green Eggs and Ham and The Cat in the Hat) that I brought to my new elementary classroom. I knew that she would have wanted to give me a starter care package for my new job and my new kiddos—the cupboards made sure she still could.

And last birthday my dad ciphered through the “extras” and gave me the “Happy Birthday” black socks with cake pieces all over them. This Christmas he found a beautifully hand painted mug still with the tag on the bottom from Ten Thousand Villages, but politely with the price torn off (my mother always taught me it was rude to let someone know how much you’d spent—or saved—on their present).

This was the best gift. This was the gift that read “From: Mom”. This was her still giving and giving even a year and a half after she was gone.

I wonder if some tiny part of her knew…
Knew that she would have to leave early.
Knew that she didn’t want to.
Knew that we would need a cupboard of presents to last us through the years.

I haven’t ravaged through all the extras yet, I still want to be surprised by my mother’s quirky gifts at Christmas and birthdays. But, I have taken a peek and seen baby clothes and house warming wine glasses.

These things won’t make up for the fact that she won’t be there when we move into our first house or if I adopt or have a baby, but a little part of her will be there.

A little part of you will always be here.

i carry your heart with me(i carry it in my heart) –-E. E. Cummings

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